Click on the graphics below to read our published article from the first survey explaining our findings.
Click the graphics below to read published articles about the Second National Patient Satisfaction Survey of US Hemophilia Treatment Centers.
Click the graphics below to read published articles about the First National Patient Satisfaction Survey of US Hemophilia Treatment Centers.
Watch for more articles as we compile the most recent data from the Second National Patient Satisfaction Survey.
This poster was presented at the Hemostasis and Thrombosis Research Society (HTRS) 2025 Scientific Symposium held in March 2025. It shares a broad overview of the Fourth Patient Satisfaction Survey results with final numbers of all surveys included.
This poster was presented at the 2024 American Society of Hematology Conference held in December 2024. It shares an overall review of early results from the Fourth Patient Satisfaction Survey.
This poster was presented at the 2022 National Hemophilia Foundation Bleeding Disorder Conference. It includes the full 2020 dataset.
World Federation of Hemophilia: COVID-19 Impact on Patient Satisfaction
In May 2022, Virginie Sirianna, one of our PSS team, presented at the World Federation of Hemophilia World Congress in Montreal, Canada, on how COVID-19 impacted patient satisfaction with US Hemophilia Treatment Centers.
This poster represents the data presented.
This poster was presented at the 2021 NHF Annual Conference and the 2021 ATHN Data Summit. It reflects early data from the Third National Patient Satisfaction Survey before it was complete.
Watch our April 2021 Webinar, hosted by NHF’s Wednesday Webinar series, and learn more about our third patient satisfaction survey. We share what it is, how it works, some things we’ve learned, and why a national survey on patient satisfaction is helpful for HTCs around the country.
National Trends from the Second National Patient Satisfaction Survey
This poster was presented at the Thrombosis & Hemostasis Summit of North America (THSNA) in October 2020.
This poster was presented at the National Hemophilia Foundation’s Bleeding Disorder Convention in Anaheim, CA. and at the ATHN Data Summit in Chicago, IL, both in October 2019.
This poster was presented at the Hemostasis and Thrombosis Research Society (HTRS) 2019 Scientific Symposium in in New Orleans, Louisiana in May 2019. It was also presented at the National Hemophilia Foundation’s Bleeding Disorder Convention in Anaheim, CA, and at the ATHN Data Summit in Chicago, IL, both in October 2019.
This poster was presented at the NHF 70th Annual Bleeding Disorders Conference and the American Thrombosis and Hemostasis Data Summit in October 2018, as well as at the Hemophilia Federation of America Convention held in April 2019.
This poster was created from the PSS data provided to the Western States HTC Region and presented at their Annual Meeting in April 2019.
Judith Baker of the Center for Inherited Blood Disorders and University of California Los Angeles, Brenda Riske and Rick Shearer of the Hemophilia & Thrombosis Center at the University of Colorado Anshutz Medical Campus, presented a webinar on the strategies used to develop the first national survey of satisfaction of care at HTCs in the United States. In this webinar, the panelists describe methods they used to administer the survey to HTC patients, and management and analysis of the data collected from respondents.
Treatment Adherence Predictors: Indicators from the US Hemophilia Treatment Center Patient Satisfaction Survey 2015. This poster was presented at the Thrombosis and Hemostasis Societies of North America's 3rd Scientific Meeting, April 2016. Click photo to view.